It’s 11am and the shopping center is buzzing with activities. If you’re coming over to 1Utama. Do drop by the 1st floor of the New Wing to say hi to me as we’re having the Lupus Awareness Day here.
UPDATE UPDATE:
Earlier we had the talk on the What is SLE by Assoc. Prof Dr. Esha Das Gupta, Consultant Rheumatologist, Hospital Seremban as well as a talk by Dr. Ong Swee Gaik of HKL and Dr. Abdul Halim Gafor of UKM.
Later at 2pm, we’ll be entertained by some performance as well as the official launch of the event by the the Minister of Health, YB Dato Liow Tiong Lai. Alot of fantastic events being lined up so don’t miss this opportunity to do something for the Lupus victims as well as to find out how we can all put our strength and energy to help these Lupus victims.
The whole event is finally over, winners have received their prizes, the Minister have had his fair share of say regarding this disease and how his ministry will support it and the party’s over. Time to sit back and relax abit… Thanks to all who came and contribute to this cause.
This is one xBox commercial from way back in 2005. Was told by SimonL to check it out, just thought I’d share it with the readers that drops by here. Oh yeah … It’s a Saturday and I’m @ 1Utama for the World Lupus Day, if you’re at home with nothing else better to do, do drop by. We’re located on the 1st Floor of the New Wing.
Come the 10th of May, drop by 1Utama and head over to the 1st floor of the New Wing.
Why? Simple, I’m going to be there (you can ask around if you’re wondering where am I) and it’s for a good cause and it’s happening from the time 1Utama opens at 10 until it closes.
On that day, is the World Lupus Day where awareness regarding the disease is brought to the public for them to know that not only AIDS and Cancer can kill, so will this other form of disease.
Now, a brief background on Lupus or SLE.
What is SLE?
Systemic Lupus Erythematosus (SLE) is a chronic, auto-immune disease of unknown cause where the patient’s body makes large quantities of blood proteins called anti-bodies that react against the person’s own tissues.
History
Lupus is the Latin word for wolf. Erythematosus means red rashes. In 1851, Dr. Cazenave discovered red rashes on a patient’s face that looked like wolf bites. He named the rash Discoid Lupus Erythematosus (DLE).
In 1885, Sir William Osler recognised that many people with lupus had a disease involving not only the skin but many other organs or systems. He named the disease Systemic Lupus Erythematosus (SLE).
Types of Lupus Discoid Lupus Erythematosus (DLE)
• Only involves the skin
• Rarely spreads to other organs
Systematic Lupus Erythematosus (SLE)
• Can spread to other organs
• Can be fatal
Statistics
About 90% of SLE sufferers are women while about 10% are men and children.
About 90% of women with SLE are in their childbearing years, within the range of 15 to 50 years old.
Ratio of SLE sufferers :
In the West, among Afro-Carribeans 1 in 250-500 people
USA - 1 in 2,000 people
China - 1 in 1,000 people
In Malaysia, it is estimated that more than 10,000 people have been diagnosed with SLE over the past 30 years. However, this number may be only the tip of the iceberg. The Malaysian SLE Association believes that there are many more SLE sufferers in Malaysia who have not been diagnosed.
Now with all that said, what I’d love you to do is, come by, donate what you feel is worth of these victims and also talk to them and know first hand what and how they lead their lives with these form of disease. There is nothing to fear but more to learn and through these experience, the most important thing that I hope would happen is that the awareness about Lupus (SLE) would grow even more and something can/would be done to help the victims both in finding a cure as well as to help them live a normal life.
Do your share for charity. Thank You
Donations can be made in the form of:
Cheque/Money Order payable to “Persatuan SLE Malaysia”
Bank In your donation to: Persatuan SLE Malaysia, CIMB Account No: 1266-0000638-054 and fax the bank-in slip to fax no: 03-7957 0407 or e-mail to pslemhq@gmail.com.
Walk-Ins (We have donation boxes made available at the venue on that day)
